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February 19, 2016 / tgexp

Waka Kickball Tournament to benefit Team Gleason

On Saturday, November 14th, hundreds gathered in City Park to play in the kickball tournament of the year! Waka Kickball league hosts the Waka Charity Kickball tournament in the fall to raise money, awareness, and support for Team Gleason.

Players were lead by Jennifer Gaubert in the National Anthem followed by a half-time performance by the Sirens of New Orleans. This year, more than $20,000 was raised for The Gleason Initiative Foundation by team entry fees, raffles, jello-shot sales, merchandise sales, a percentage of Parlay’s bar sales and other misc. donations from various individuals and corporate sponsors. Steve even joined the fun for the majority of the event!

We would like to send a huge thanks to Sean Gaubert, the Director of the New Orleans Waka Chapter, and Tabitha Diecidue for their tireless efforts in making this event happen year after year. The continued success of this event is a direct reflection of their continued support and dedication to Team Gleason.

Team Gleason loves Waka Kickball!


February 19, 2016 / tgexp

Roxanne Green, Receives Eye Technology

With the funds donated to the Gleason Initiative Foundation, Team Gleason was able to provide Roxanne Green with a Tobii Eye Gaze System.


“First of all, I want to thank The Steve Gleason Foundation and Steve Gleason and his family for my Tobii. I want you to know how important it is to me and my family. It has helped me to communicate with the outside world in so many ways. My boys get so excited when they hear me talk with the Tobii, they laugh and laugh and always want me to say their names. My family and I are believing for a healing or cure everyday.” – Roxanne Green

Roxanne is a mother of 4 boys. She says her sons make getting out of bed worth it everyday. With the help of her communication device, Roxanne remains an active and vital part of her children’s lives. She can communicate with teachers through email and text as well as check on homework, projects and grades again.


October 14, 2015 / tgexp

Chuck Breath Anniversary Surprise

The Breath’s Anniversary Surprise – A Team Gleason Adventure full of wonderful memories… 

What a day and what a surprise! This year Chuck and Ellen Breath celebrated 47 years of marriage. Little did they know on Valentines Day they were going to spend the day surrounded by many friends and family at one of their favorite locations, The Grand Hotel at Point Clear, Alabama.


Chuck was diagnosed with ALS a little over three years ago. Ellen is his wonderful caregiver who tirelessly makes sure he has all the care he needs with much love and support. Team Gleason has been an invaluable source of knowledge, compassion and support during Chuck’s fight against ALS.


Team Gleason and the family wanted to do something special for them, but what? This is where the idea for a destination celebration started. Everyone involved in the planning wanted it to be a surprise, but that was easier said than done.


Chuck and Ellen’s daughter, Missy , started contacting family members and long time friends to save the date. Everyone was excited and looking forward to it. 


As the date got closer, the secret was getting harder to keep. They knew something was up, but couldn’t quite figure it out. When the weekend finally arrived they were very excited.


That morning Ellen and Chuck were ready for the “small” family brunch and made their way to the main event room. Along the way there started seeing friends of theirs that were waiting for them to arrive. At first they thought it was just a coincidence, but then realize that it was going to be a get together of many friends and family.


When they entered the ballroom, they were greeted and cheered by a LARGE group of friends and family! The ambiance was spectacular with great food, a great jazz band, beautiful decorations and a great water view. The room had been decorated with a nautical theme in honor of Chuck’s love to boating and to coincide his theme “Sink ALS”.


During the brunch many memories were shared and toasts made in honor of Chuck and Ellen.


Chuck and Ellen were genuinely surprised and enjoyed spending the special occasion with everyone. The joy and the happiness that this event brought to them could not be missed.


Many thanks to Team Gleason, Mr. Paul Varisco, Suzanne Alford, and Liz Chapaton for making this event SO special and providing such a memorable time for all involved! And a special thanks, to our beacon of hope, Steve and Michel for leading all the pAlS in the fight against ALS.


The Breath Family

October 14, 2015 / tgexp

Marvin Smith and Ryan Griffin

A big thank you to Ryan Griffin for his support of Team Gleason and the ALS community! Griffin, former New Orleans Saints back up QB, continues to support Team Gleason in Tampa while serving as the veteran QB for the Buccaneers. Last night, Griffin spent some time in Tampa with New Orleans native Marvin Smith watching Monday Night Football. Both Martin and Ryan attended Tulane University. Marvin was unable to attend Gleason Gras this year, so Ryan brought him a 2015 Gleason Gras shirt and some TG swag!


May 27, 2015 / tgexp

Susie & Steve DePascale, Eye Technology

With the funds donated to The Gleason Initiative Foundation, we were able to provide Steve DePascale an eye technology kit.

See below!

Dear Team Gleason,
We wanted to write you to thank you from the bottom of our hearts for your generously in sending me the WinSlate 13 Eye Gaze Device.
After being diagnosed in August 2011, my progression has pretty much been the same as Steve’s. Starting with arms, than legs, then breathing. Within the first 2 years, I went from being a successful business owner to being totally paralyzed,confined to a wheelchair, depending on ventilator around my nose 24/7.
To say that the device came in the nick of time is an understatement! My speech has deteriorated so much, that my wife, kids, friends & caregivers can barely understand me. Not only that, I’m going to have to get a feeding tube placed because I can no longer swallow solid foods. This is normally a pretty routine procedure, but when I went to get it done 2 years ago, they could not do it because of a prior stomach surgery. Now it has to be a full blown surgical procedure. My doctor is preparing me to the fact that I’ll probably come out of the surgery having to have a Tracheotomy also because my breathing is so bad.
While this wasn’t the end of the world for me, what was the worst was the fact that communication between my loved ones, caregivers & my wife, Susie, would be limited at best. I wasn’t sure I could’ve handled that.
Then low and behold Team Gleason came into our lives! With you’re generous donation of this device, I no longer fear the fact I’ll probably never speak again. In a few months I have mastered the device to the point that I don’t miss my desktop computer one bit! The fact that the unit is unlocked is a game changer. I not only use it for speaking, but also for texting, controlling all my TVs, controlling my Sunos music system, surfing the web & emails. I wrote this email with the device. After having to fight with Medicare/Medicaid for everything I need, The thought of having to deal with them again to get a far less functional device was disheartening.
My entire family thanks you Steve & you’re entire organization. You are truly an inspiration for all you do for ALS patents. You’re grit & determination to raise awareness for this wretched disease is unbelievable. It makes me feel all is not lost.
God Bless you ,you’re family & Team Gleason.

#No White Flags

Susie & Steve DePascale

April 22, 2015 / tgexp

Bert and Jennifer Lange, Eye Technology

Liz & Everyone at Team Gleason, 

Thank you from the bottom of our hearts for providing Bert with the tobii eye gaze.   Bert always said one of the most difficult things for this disease to take is his voice, his means of expression and communication, that was a great fear of ours.  The tobii is amazing,  and the fact that we do not have the worry of the device being locked or taken,  that Bert can use it to its full potential is a huge relief.   This tobii is a huge positive for Bert,  a motivator to continue to have a voice and to want to use it to keep advocating for ALS.   Steve Gleason and Team Gleason is a huge inspiration to all of the ALS community and to Bert and me, this disease is hard in so many ways but acts of kindness like this and all that your organization does for people living with ALS helps so much.   Thank you doesn’t seem like enough,  know that we are so grateful. I took a few pictures and I wanted to make sure it was OK to share them on social media and post a thank you? Bert has been using the tobii since it arrived and is doing really well with it.   We think it is awesome that your cell phone can be set up and that it has an alarm and email and just all the amazing things it is capable of.  We were surprised at how natural it seems to become,  our kids think the voice is cool so we have their stamp of approval 🙂 Technology is key. Thank you,  thank you,  thank you. 
Bert and Jennifer Lange 
#webelievefightals #notquietly #nowhiteflags



April 21, 2015 / tgexp

Scott Thomas, New Orleans, LA 2015

With the funds donated to The Gleason Initiative Foundation, Team Gleason was able to send Scott Thomas and his fiancee, Sarah on an unforgettable trip to New Orleans, LA. Steve and a few of the other team members were fortunate to have some free time to be able to spend with Scott and Sarah as well. Below is a summary of their visit:

Our Team Gleason Adventure.

My Fiancé Sarah and I arrived in New Orleans on a Tuesday night at 9 pm. We went straight to our hotel to rest up for the big week ahead of us. We were pleasantly surprised to walk in to our hotel room and see the bed covered with Team Gleason and Mardi Gras swag. A TG flag, t-shirts, bracelets, stickers, decals, tickets to a Pelicans game and Annie, Mardis Gras beads, feathers, and a King Cake (Google it, it’s a delicious and fun tradition).
Wednesday was pouring rain all day. So, we dedicated the day to staying inside eating delicious food and drinking great local beer. That night the rain subsided, and we made our way to the Pelicans vs Thunder game. Great seats and hospitality from the arena staff. The game was tight til the end. Westbrook went off for a career high 45 points.
Thursday was our day for exploring the city. Started out having a fun breakfast at a local spot called Jimmy J’s. The waiter was hilarious. He entertained the small room with voodoo stories and magic tricks. We then made our way to beautiful Jackson square. Listened to talented jazz street performers, walked around the historical cathedral, then headed to the French market. Made our way through the market then walked along the great Mississippi River. We took Bourbon street back to our hotel. Ooooofta! And I thought the Vegas strip was wild!  Had some dinner and New Orleans signature drink the Hurricane, then called it a night.
Friday we celebrated Sarahs birthday with Team Gleason. We hailed a cab and made our way to the Saints training facilities. Tommy of TG met us in the lobby and took us on a tour. Saw a couple pictures on the wall of Steve sporting the goldi-locks hair do. He’s a big deal all around the world, but he’s a really big deal to the Who Dat nation and the city of New Orleans. Sarah waited in the hall while Tommy took me into the locker room, (didn’t want to give her to much of a culture shock!). Chatted with some equipment guys and met a player who might have been related to the Incredible Hulk.  Felt like I was a toddler shaking his hand. Nice guy. We rejoined Sarah and made our way into the cafeteria shared with the Pelicans. We pulled up to visit with Rob Ryan and a table full of staff. All very nice guys. We then got the pleasure to finally meet Lauren of TG, (she set up our trip and is AWESOME). Spent the rest of the time before Steve showed up visiting with Steves old coach Greg McMahon. Just a really kind, genuine guy, and he wasn’t going anywhere until he got to say hi to Steve. Once Steve and Blair of TG arrived we spent a while visiting. Then we all went and played around in the indoor field and weight room. Took some photos with Steves iconic punt block banner in the background. Steve was gracious enough to invite us to check out his home automation. He showed us how he runs his eye gaze and home automation, helped answer our questions in regards to my eye gaze, and was sincerely interested in making sure we were set up well. We got to meet Steves beautiful family. We then had birthday dinner for Sarah, went to Annie, and caught the tail end of a Mardis Gras parade. Awesome day full of unforgettable memories.

Takeaways:  New Orleans culture, it’s food, it’s people, it’s everything are incredible!  I now love the Saints and will root for them as long as they’re not playing the Steelers. Steve and the rest of Team Gleason are some of the most special people on earth. Sarah and I are so grateful to TG for hosting on our adventure, and for everything they do for the ALS community.

No White Flags!
Scott & Sarah