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April 22, 2015 / tgexp

Bert and Jennifer Lange, Eye Technology

Liz & Everyone at Team Gleason, 

Thank you from the bottom of our hearts for providing Bert with the tobii eye gaze.   Bert always said one of the most difficult things for this disease to take is his voice, his means of expression and communication, that was a great fear of ours.  The tobii is amazing,  and the fact that we do not have the worry of the device being locked or taken,  that Bert can use it to its full potential is a huge relief.   This tobii is a huge positive for Bert,  a motivator to continue to have a voice and to want to use it to keep advocating for ALS.   Steve Gleason and Team Gleason is a huge inspiration to all of the ALS community and to Bert and me, this disease is hard in so many ways but acts of kindness like this and all that your organization does for people living with ALS helps so much.   Thank you doesn’t seem like enough,  know that we are so grateful. I took a few pictures and I wanted to make sure it was OK to share them on social media and post a thank you? Bert has been using the tobii since it arrived and is doing really well with it.   We think it is awesome that your cell phone can be set up and that it has an alarm and email and just all the amazing things it is capable of.  We were surprised at how natural it seems to become,  our kids think the voice is cool so we have their stamp of approval 🙂 Technology is key. Thank you,  thank you,  thank you. 
Bert and Jennifer Lange 
#webelievefightals #notquietly #nowhiteflags


   

 

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2 Comments

Leave a Comment
  1. Jennifer Wise / Apr 23 2015 5:12 pm

    That is amazing.

  2. Andrew / Dec 30 2015 4:44 am

    Wow! Amazing

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